it's sort of the truth of ronan's life. >> you write ronan was ronan. he was never just a sick baby. my life as his mother was more tan just managing the illness and the many difficulties it presented. explain how you got through day-to-day. >> i got through ronan's illness and his death by writing this book, which saved me in every way, and by reaching out to other people so that people in the national organization, my amazing group of friends, my family. everyone sort of surrounded me and supported me. i did not feel isolated at any time during this journey. >> you call the mothers and other parents who have been through this, who have also experienced loss dragons. dragon moms. >> dragon moms. >> what do you mean by that? >> i like the image because a dr dragon is medieval, rare, inconvenient. and it's a very rare illness and also a medieval illness. we're big and unwieldy and are loud and have fiery magic and all of those things. >> you describe what rick went through as well. he fathered ronan beautifully, attentively, lovingly. his parenting appro